Slow but steady progress. That's how we roll.
It's been a week since the distractors came off & the failed capping attempt. Bodie is doing great otherwise. He seems happier (how that's possible, I don't know) maybe because the distractors aren't poking him anymore & his face is beginning to feel "normal" again.
The recommendation we received was to increase the time we are trying his Passy-Muir speaking valve on him, so eventually he can work up to tolerating it for a whole day. This could take months, but we are going to remain firm in our resolve to see this through & get rid of that damn trach.
He's doing much better at sitting up, (supported) and is almost able to roll himself over on to his stomach.
Finally, he just keeps getting more adorable each day. I do love that boy!
RH
