Being sick sucks...

Especially if you are eight months old with a trach.

Bodie caught Wade's cold after Easter. I'm officially quarantining the house from all guests until Bodie gets his trach out. and Wade can no longer attend Church unfortunately.

It is just heartbreaking to see Bodie suffer like this.

He can't breathe, can't cough, he can't get comfortable. We've been up two nights now by his bedside giving him breathing treatments every two hours and antibiotics.

I'm very close to taking him to the Hospital.

I don't have the money for another medical bill, nor do I have time on the books to take off from work. What I need right now is a damn miracle.

I just want my son to not be sick anymore.

RH

Easter

We had a great Easter Holiday. My Mom was here until Saturday & she got to spend lots of time with the boys. She helped Wade dye Easter eggs & spent a lot of time making Bodie smile ear to ear...

RH

Bodie gets to meet his Me-me & other good news...

Bodie got a wonderful gift yesterday. My mom surprised us with a visit for a few days & got to meet her grandson for the first time! Bodie was happy to give his Me-me lots of big smiles & kisses.

Life is good.


In other news, we head to Ochsner's tomorrow for a CT Scan to make sure everything is looking good for his upcoming surgery. Me-me is staying home with Wade & we home to be back by mid afternoon.

RH

Surgery Scheduled...

Got the news yesterday after meeting with the Cranio-facial team...

Bodie is set to have his jaw distraction surgery on May 11th, along with tubes placed in his ears & a muscle biopsy to test for Myopathy (Muscular Dystrophy).

The head Surgeon who does the cleft palate repair surgery said that Bodie was a good candidate & should get the surgery around age 1yr to 18mo.

We also saw his Pulmonologist & a Gastrointestinal Doctor. Both visits showed marginal improvement which I'll take over regression any day.

I'm happy & excited while nervous at the same time.

RH

Anticipation...

It's the word that comes to mind when I think about this Wednesday.

Bodie is scheduled to meet with about eight different doctors in New Orleans, including the Cranio-facial Surgical team to assess him for his future surgery to correct his palate & possibly his jaw (distraction). They will also be assessing his ears for tubes to be placed in the future.

It's going to be a long day for sure. I'm going to be taking lots of notes...

Hearing Bodie's voice for the first time...

This was during Bodie's Hospital stay. He was on a ventilator to breathe & the extra escaping air was passing over his vocal cords & allowing him to "cry" out loud for the first time.

Trach Style

This is what I call "trach style".

My beautiful baby boy sporting a mohawk & his tracheostomy.