Slow but steady progress. That's how we roll.
It's been a week since the distractors came off & the failed capping attempt. Bodie is doing great otherwise. He seems happier (how that's possible, I don't know) maybe because the distractors aren't poking him anymore & his face is beginning to feel "normal" again.
The recommendation we received was to increase the time we are trying his Passy-Muir speaking valve on him, so eventually he can work up to tolerating it for a whole day. This could take months, but we are going to remain firm in our resolve to see this through & get rid of that damn trach.
He's doing much better at sitting up, (supported) and is almost able to roll himself over on to his stomach.
Finally, he just keeps getting more adorable each day. I do love that boy!
RH
I have read your blog off of the PRS support and felt the need to follow your blog. I have read that you have had trouble with your home health care and thought that maybe I could help out a bit. My Son has recently had his trach removed May 30th and I have extra supplies. I was wondering if you are in need of anything that they are not supplying enough of or having to pay out of pocket. let me know and I can send some to you no charge. tdroblyn@yahisone.com
ReplyDeleteKristina Droblyn
Thank you for your kind offer Kristina, I will let you know if I think of anything.
ReplyDelete